NI Rare Disease Partnership

Come along and learn more SENCA provide advice and support on a range of issues including statutory assessments, statements of special educational needs, obtaining provision in school and appeals. SENAC places the focus on the needs of the child and works with parents, schools and education bodies to ensure that children receive the right support and resources according to their learning needs.  We work to protect children and young people’s rights and entitlements under the Special Educational Needs (SEN) system and aim to ensure that decisions are based on the best interests of the child. For more information email or to register your place:

Regional Nutrition Information Sessions for January

This month I wish to highlight the exciting dietitian led webinars that are coming up in January. Whether you are looking to pick up some ‘Top Tips for a Healthier Weight’ or maybe you want to learn about ‘Nutrition for Sport’, there is something for everyone in January’s webinar schedule. I would encourage you to participate in as many as you can, and remember they are free and open to all, so please feel free to share the flyer amongst your networks. You will find a copy of the January schedule and the links to register for each of these sessions below – you don’t want to miss them!

If the dates/times don’t suit or you would like to find out more about other nutrition topics, pre-recorded sessions are available to watch at

Top Tips for a Healthier Weight – Wednesday 5th Jan @ 6:30pm – 7:15pm, available at: or,Z7-Vz65V30q3zHrM65smUw,RoCFsfzd8kClP5F2tMKVGw,KDg-zk4tM0agEcykua9dNA,2as6Bx19ikCxdBfeFaIqog,qDLsq_JLpECYczaZ6EhI_Q?mode=read&tenantId=9c9a30de-d8d7-4aa4-9600-4be7625ff6c5

Feeding under 5s – Wednesday 12th Jan @ 11am – 12pm, available at: or

Introduction to Solids – Thursday 13th Jan @ 10am – 11am, available at: or

Nutrition for Sport – Wednesday 26th Jan @ 8pm – 8:45pm, available at: or



NCB Focus Group Opportunity

NCB are working with Oxford University and Nuffield Department of Population Health to recruit parents and caregivers for a research project on the impact of changes in healthcare delivery on the care of children with chronic illness during the Covid-19 pandemic.

 Looking specifically to talk about these health conditions:

Health Condition Date of focus group Time


Asthma Friday 7 January 2022 7.30-8.30pm


Mental Health Tuesday 11 January 2022 7.30-8.30pm
Cancer Tuesday 18 January 2022 7.30-8.30pm
Diabetes Tuesday 25 January 2022 7.30-8.30pm
Neurodiversity i.e. ADHD, Autism, Dyslexia Tuesday 2 February 2022 7.30-8.30pm
Complex health conditions Tuesday 8 February 2022 7.30-8.30pm

Please help by sharing info to your contacts/networks and asking them to spread the word of the opportunity to parents and caregivers who access your services.

Further details of the project and how to sign up to the focus group here: