NI Rare Disease Partnership’s virtual support hub provides information, support & guidance to people living with a rare disease in NI.
For further information: Email – info@nirdp.org.uk or Visit – https://nirdp.org.uk/
Welcome to the 92nd edition of our information bulletin, ‘FYI’ (For Your Information).
In the run-up to Christmas, we are learning more about the challenges faced by families and services through the Cost of Living Crisis. We continue to encourage those organisations and services who provide support for families to add their details to the CYPSP resource on page 3 and also to use this to help signpost families to much needed support.
The need for effective partnership working and communication has never been greater, so we extend an invite to all our readership, either working or volunteering with children, young people or families, to attend one of our Locality Planning Group meetings, where we exchange information, contacts and signposting opportunities, as well as providing mutual support with a cup of tea in an informal arena. Dates of these meetings can be found on page 49.
The next issue of ‘FYI’ will be circulated on Thursday 24th November 2022.
Joanne Patterson & Darren Curtis, Locality Development Team, Southern Area
Welcome to the 57th edition of the fortnightly newsletter for Locality Planning Groups in Ards, North Down & Down.
(Note: Newsletter will download directly to your device. Look out for the pop-up box and click on open file when it appears).
In the run up to Christmas, we would like to share information on services promoting emotional, social and financial support for struggling families. Please share with your contacts.
If you wish to advertise any upcoming programmes or activities please see the guidance on the back page.
This report from Family Fund explores the challenges facing families raising disabled children.
Welcome to the October/November 2022 edition of the locality news for Derry, Limavady, Strabane and Waterside Locality Planning Groups with lots of the latest information on training, programmes, events and resources across the local area.
Download your copy – Derry, Limavady, Strabane & Waterside LPG News – Oct/Nov 2022
(Note: LPG News will download directly to your device. Look out for the pop-up box and click on open file when it appears).
